I’ve just completed a survey, asking just that: what is the cost of cmv to my family life?
It’s one I can measure easily, in so many ways.
I’ve just completed a survey, asking just that: what is the cost of cmv to my family life?
It’s one I can measure easily, in so many ways.
Watching Mike tuck in to his second jelly today, it’s hard to ever remember a time he didn’t eat. Three years on from feeding therapy beginning, we are a long, long way from him ever not eating again.
It was in 2014 when finally after 18 months of fighting, our Clinical Commissioning Group (CCG) agreed to fund specialist feeding therapy with Clarissa Martin from Midlands Psychology, for Mike.
So, Tuesday 15th November 2016, I was invited to speak at the 8th PREM – Perinatal Research and Education Meeting.
When Mike was diagnosed with Congenital CMV, I pictured a wheelchair and a ramp up to my front door. I knew absolutely nothing about disabilities. I thought you could always see ‘what’s the matter’ and I’d never had any insight into caring for someone.