We will often be playing at the park and some one will say “ah, how old is he?” When I reply two and a bit, I’m often met with a sad expression and a person completely lost for words. Their sadness is a reminder his life’s different but I don’t feel sad for him. Continue reading
Mike was discharged today, from Gastroenterology. Hooray! Continue reading
Michael’s paediatrician had become very aware at the point he got his NG tube, that we spent lots of our time at lots of appointments. Three a week was standard (often more than that). Tons of money thrown away on petrol, car parking and hospital coffees; but much more important than that, time away from family life and toddler paced days. (Not to mention the cost to the NHS!) Continue reading
I was really honoured to be nominated by my friend Kate Warren, for Manchester Evening News Mum of the Year 2014.
Off we went (my mum, sister Cath & Kate) on Friday, 28th June 2014 to the ceremony. Getting to the hotel was pretty stressful. Continue reading
My two big worries approaching this intervention were Mike’s sensory sensitivies and vomit! Believe it or not vomit is a big part of Mike’s sensory problems. As well as the senses we are familiar with, for example sight, hearing, touch; our ability to self-regulate also forms part of our sensory world. Continue reading
