I’ve just completed a survey, asking just that: what is the cost of cmv to my family life?
It’s one I can measure easily, in so many ways.
Counting the Cost of CMV
Category Archives: CMV Feeding Therapy
Big Brother
Thank you forever John Leech
Watching Mike tuck in to his second jelly today, it’s hard to ever remember a time he didn’t eat. Three years on from feeding therapy beginning, we are a long, long way from him ever not eating again.
It was in 2014 when finally after 18 months of fighting, our Clinical Commissioning Group (CCG) agreed to fund specialist feeding therapy with Clarissa Martin from Midlands Psychology, for Mike.
He might be…
When Mike was diagnosed with Congenital CMV, I pictured a wheelchair and a ramp up to my front door. I knew absolutely nothing about disabilities. I thought you could always see ‘what’s the matter’ and I’d never had any insight into caring for someone.
“So a cold did all that?”
If I had a pound for every time I’ve heard that statement. I’d be rich!
Yes. Just a cold, left my newborn son fighting for his life and permanently disabled. It really is that simple, unfortunate and scary. Continue reading
